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Conceptual, methodological and ethical issues in children´s research in Portugal

Fernandes, Natália; Tomás, Catarina Almeida
Fonte: Universidade do Minho Publicador: Universidade do Minho
Tipo: Conferência ou Objeto de Conferência
Publicado em //2011 ENG
Relevância na Pesquisa
86.08%
Methodological issues in research with children have sparked a growing interest by the Sociology of Childhood since the last decades. In Portugal, this interest is more recent, but it has had a significant increase. Considering several researches, namely master thesis, supervised by the authors on the framework of Sociology of Childhood, this proposal intends to characterize some methodological complexities in research with children in Portugal, when we consider their voice and agency in the knowledge producing about them. The goal of this paper is to contribute to the methodological discussion on research with children through the identification of a set of challenges related to: (i) the diversity of methodologies uses in children’s research, (ii) ethical concerns and (iii) the role of the researcher.; CIEC - unidade de investigação 317 da FCT

Big data, open science and the brain: lessons learned from genomics

Choudhury, Suparna; Fishman, Jennifer R.; McGowan, Michelle L.; Juengst, Eric T.
Fonte: Frontiers Media S.A. Publicador: Frontiers Media S.A.
Tipo: Artigo de Revista Científica
Publicado em 16/05/2014 EN
Relevância na Pesquisa
35.76%
The BRAIN Initiative aims to break new ground in the scale and speed of data collection in neuroscience, requiring tools to handle data in the magnitude of yottabytes (1024). The scale, investment and organization of it are being compared to the Human Genome Project (HGP), which has exemplified “big science” for biology. In line with the trend towards Big Data in genomic research, the promise of the BRAIN Initiative, as well as the European Human Brain Project, rests on the possibility to amass vast quantities of data to model the complex interactions between the brain and behavior and inform the diagnosis and prevention of neurological disorders and psychiatric disease. Advocates of this “data driven” paradigm in neuroscience argue that harnessing the large quantities of data generated across laboratories worldwide has numerous methodological, ethical and economic advantages, but it requires the neuroscience community to adopt a culture of data sharing and open access to benefit from them. In this article, we examine the rationale for data sharing among advocates and briefly exemplify these in terms of new “open neuroscience” projects. Then, drawing on the frequently invoked model of data sharing in genomics, we go on to demonstrate the complexities of data sharing...

Applying for ethical approval for a national multisite study: The challenges and barriers

Kornhaber, R.; Abu-Qamar, M.; Wilson, A.
Fonte: Monash University Printing Publicador: Monash University Printing
Tipo: Artigo de Revista Científica
Publicado em //2012 EN
Relevância na Pesquisa
25.77%
This paper describes the challenges and barriers experienced when seeking Human Research Ethics approval for a national multisite qualitative research study. Applications for ethics approval were submitted to Human Research Ethics Committees(HRECs) across four Australian states in November 2010. Three out of the five HREC applications required alterations. None of the HRECs acknowledged approvals from the other HRECs. The authors found there was a lack of appreciation and knowledge of qualitative research and, in particular, the phenomenological methodological approach whereby HRECs attempted to quantify the qualitative research methodology. The issues encountered created complexities for the researchers and delayed the commencement of the study. Our experience suggests that multisite studies are unduly delayed due to current HRECs methods of review. HRECs need to address the efficiency of their ethics approval practices through harmonising multisite ethical review processes enabling the recognition of a single ethics and scientific review with mandatory expedition to all subsequent HRECs.; http://journals.publishing.monash.edu/ojs/index.php/mber/article/view/887; Rachel Anne Kornhaber, Ma’en Zaid Abu-Qamar, Anne Wilson

Exploring policy makers' perspectives on a clinical controversy: airway surgery for adult obstructive sleep apnoea

Elshaug, A.; Hiller, J.; Moss, J.
Fonte: British Med Journal Publ Group Publicador: British Med Journal Publ Group
Tipo: Artigo de Revista Científica
Publicado em //2009 EN
Relevância na Pesquisa
15.68%
Background and objectives: Worldwide, there is increasing focus on measures to reduce ineffective healthcare practices. Upper airway surgeries for the treatment of adult obstructive sleep apnoea (OSA) represent a case-study in this area, given recent publications that draw into question their efficacy. Policy stakeholders were canvassed to assess their perspectives on this. Design and setting: Senior health policy stakeholders from Australia were criterion and snowball sampled (to identify opinion leaders). Participants were presented with preparatory material and took part in individual semistructured interviews. These focused on eliciting responses to recently published evidence and a relevant Cochrane review. Questions were posed relating to clinical effectiveness and associated policy implications. Interviews were taped and transcribed for thematic analysis. Participant comments were de-identified. Findings: Ten stakeholders were interviewed before saturation was reached. Thematic analysis highlighted participant concern with the diversity of procedures on offer, coupled with limited effectiveness (suggesting potential clinical uncertainty) and considerations therefore of resource allocation (potential opportunity cost). Stakeholders seem aware of the methodological complexities...

Conceptual, methodological and ethical issues in children's research in Portugal

Fernandes, Natália; Tomás, Catarina Almeida
Fonte: Escola Superior de Educação de Lisboa Publicador: Escola Superior de Educação de Lisboa
Tipo: Conferência ou Objeto de Conferência
Publicado em /09/2011 ENG
Relevância na Pesquisa
86.08%
Methodological issues in research with children have sparked a growing interest by the Sociology of Childhood since the last decades. In Portugal, this interest is more recent, but it has had a significant increase. Considering several researches, namely master thesis, supervised by the authors on the framework of Sociology of Childhood, this proposal intends to characterize some methodological complexities in research with children in Portugal, when we consider their voice and agency in the knowledge producing about them. The goal of this paper is to contribute to the methodological discussion on research with children through the identification of a set of challenges related to: (i) the diversity of methodologies uses in children’s research, (ii) ethical concerns and (iii) the role of the researcher.

Book review: Insider research on migration and mobility: international perspectives on researcher positioning, edited by Lejla Voloder and Liudmila Kirpitchenko

Lawson, Michelle
Fonte: London School of Economics and Political Science Publicador: London School of Economics and Political Science
Tipo: Website; NonPeerReviewed Formato: application/pdf
Publicado em 28/03/2014 EN; EN
Relevância na Pesquisa
45.68%
"Insider Research on Migration and Mobility: International Perspectives on Researcher Positioning." Lejla Voloder and Liudmila Kirpitchenko (eds). Ashgate. January 2014. --- Bringing together the latest international scholarship in the sociology and anthropology of migration, this volume explores the complexities, joys and frustrations of conducting ‘insider’ research. In this book, the authors set out to offer analyses of key methodological, ethical and epistemological challenges faced by migration researchers as they question the ways in which they come to identify with their research topic or their participants. Michelle Lawson recommends this book to anyone interested in migration, mobility and researcher positioning.